This morning I arrived at the hospital to find Emmett completely off oxygen! D and I had gone to a concert last night (our first night out together since E was born) and apparently the nurse had taken him off oxygen shortly after I left the hospital yesterday evening. He did great overnight and was doing fantastic when I got there, so I had high hopes this would finally work (even though we had taken him off oxygen once before, only to have to put him back about 12 hours later). Unfortunately, a few hours later (and after I had already posted to Facebook bragging he was off oxygen support), it was clear he was getting tired and desatting more than normal again, so they put him back on. He’s still only at 1/64 of a liter, which is virtually nothing, but apparently that “nothing” makes all the difference to him. My brain knows he’s making big strides and it’s only a matter of time before he’s off oxygen for good. But my heart hurts. I really got my hopes up this time.
He otherwise had a good day. That 1/64 of a liter is really so minimal, yet just what he needs right now, and he had a very boring afternoon with much fewer desats than average. D went back to the hospital after dinner tonight and said he’s been doing well this evening too. He gained an impressive 118 grams tonight, bringing him to 5 lbs 11 oz.
2 thoughts on “NICU day 64”
Two steps forward, one (baby) step back…
So happy to see all the progress little Emmett has been making. We were due date buddies on TB and reading about your journey has been inspiring. I watched a friend go through a similar situation (son was born at 28 weeks) and I know it’s so incredibly tough it was on her with the back-and-forth to the NICU. Her son is now a rough and rowdy 3-year-old that shows no fear. Wishing all the best for you and your family!