It’s been an interesting month, health-wise. As I mentioned before, we’ve been seeing a pulmonologist at Children’s Hospital, due to E’s chronic breathing issues. After chest x-ray and echocardiogram results came back normal, the pulmonologist decided to refer us to a feeding therapist to check for silent aspiration as a potential cause for his wheezing and coughing. She didn’t think it would be the culprit, but wanted to “rule it out.” Unfortunately, we weren’t able to rule it out because it turns out that is the culprit. Or at least part of it. Emmett is aspirating as he’s eating. So now we have to add thickener to his bottles. As of now I’m still allowed to continue breastfeeding morning, night and weekends as I have been, as long as I keep him upright and give him breaks, but we have a swallow study coming up May 2 to assess the severity. Depending on how badly he’s aspirating, we could end up having to go to all bottles. After working so hard to breastfeed this kid, now this.
I suppose I shouldn’t be surprised by anything at this point. Eveyone had warned me that prematurity doesn’t end when you leave the NICU, and that the consequences of being born early can follow kids for quite a while — sometimes a lifetime. But I’ll admit that a part of me had hoped he would be the exception. He is such a strong little boy, though, and I know we will get through this. And as frustrating as it is to keep encountering hurdle after hurdle, I am also acutely aware of just how much worse things could be. Perspective is so important.
With that said, here’s what’s going on with our 11 month-old:
Adjusted age: 8 months.
Stats: 15.6 lbs and 27 inches. We have growth finally! He is still a peanut, just barely clinging to the charts around third percentile for his adjusted age and nowhere near the charts for his actual age, but it’s nice to see progress. Thank you, butter.
Milestones: Finally reliable at sitting (without feeling like I need to spot him), pulls up to standing, and even lets go briefly.
Sleeping: Getting much better! He sleeps through the night about half the time, and the times he doesn’t he’s only up once. But a good friend told me to never trust a baby. So there’s that.
Eating: This kid loves to eat, and he’s getting much more efficient about it. In other words, more is finally ending up in his belly than on his belly. He also doesn’t appear to be picky at all, and will even eat any green veggie (could have something to do with the fact we’ve been instructed to add butter to everything, though!). We’re experimenting with some dissolvable finger foods like puffs, yogurt melts and mum mums, but haven’t made the leap to real table food yet. I’m still terrified of choking and he also still doesn’t have any teeth yet! I know I need to get over that fear and start giving him stuff soon, though.
Personality: So happy and very curious and determined! He gets into everything, but is also very good about responding to me correcting and redirecting him when he gets into something he shouldn’t. He seems very socially aware, if that’s even possible for an eight month-old. It will be interesting to see if this trait of his continues as he develops.
Likes: Bathtime, big brother, getting into stuff.
Dislikes: Still hates his inhalers.
Mama: Still stressing about my milk supply. Interestingly, when we took E in for his feeding evaluation, the OT, who is also an IBCLC (lactation specialist), confirmed what I’ve known deep down for quite a while — I’m not making enough milk. I knew I was only pumping about half of what he needed, though everyone kept telling me babies are more efficient than the pump and if he was really hungry he would let us know — so I had just continued to dip into my freezer stash to get him though the day at daycare and continued to exclusively nurse on the weekends. But the OT reiterated that while yes, babies are more efficient than the pump, nursing is still supply and demand, and by the time I got to the weekend my body was already adjusted to what I was pumping all week — about half of what he needed. On the weekends he was probably nursing just enough to take the edge off, but there’s no way he was getting enough from me alone.
I cried on the way home from the appointment, feeling like a shitty mom for basically starving my baby on the weekends. Thankfully, the OT/IBCLC and I worked out a plan, and I’m feeling good about what we have to do to move forward and get him enough food without losing any more of my supply. So now after nursing, I’m supposed to offer him an extra ounce or two via bottle, and ideally pump too, though she acknowledged that wasn’t very practical with busy schedules. She also said I was a good candidate for Domperidone, which is supposed to be very effective at increasing milk production. In fact, it’s so effective that adoptive mothers sometimes take it so they can actually induce lactation. I just started it and am hoping to start seeing results soon. If it doesn’t work, I think I’m probably ready to throw in the towel on nursing once we reach the end of our freezer stash, knowing I’ve tried everything I could. And depending on the results of the swallow study, that may be the direction we’re headed anyway. I had hoped to nurse to a year adjusted, but I may have to settle for a year actual.
A year. How is that possible it’s been almost a year?